Welcome to Care Partners' Corner! Thoughts, ideas, and resources to help Care Partners balance their own lives with those of a loved one fighting back against Parkinson's ...
Thank YouIt is the time of year to reflect. Especially after this past year. Two things really resonate with me as I write today. A song and a con...
Our RSB FamilyI believe most of us joined, and have remained, part of the Rock Steady Boxing, JAX HOPE, program because we could see that the boxing ex...
Patience(Or…” Are you done with that yet?”) During this COVID lockdown I’ve found a lot of time to read. And most PD groups (i.e. Michael J. Fox ...
Mindfulness[Thank you, John Alberti, for bringing up this topic.] We all know words or concepts which became trendy. In the late 90’s and early 00’s...
Where is the Watch?Here we are, four months into social distancing and our world is still largely confined to our house. At times, it feels like the house i...
This Pandemic Isn’t Going as Planned Dad, Lew, and I were sitting at the card table yesterday putting together our third jigsaw puzzle. It is a great activity for Dad. He get...
Captain’s Log: Social Distancing-Day 467I wish I could say, “Beam me up Scotty,” and be rid of this coronavirus laden planet! I’m tired of it. I’m sure you are tired of it too. ...
I Miss Everyone!I woke up today and thought, “I have nothing to do today.” It has been 12 days since our family has been “social distancing”. A little lo...
HOW CAN WE PROTECT OUR PD LOVED ONE(s)?I don’t know about you, but this COVID 19 coronavirus has me concerned. My 85-year-old father with PD and a long history of coronary arte...
I'm Annoyed!What a way to start, right? But I might as well lay it out there. Contrary to popular opinion, yes, I get annoyed. (Ok, my husband just b...
IS THE GLASS HALF-EMPTY OR HALF-FULL? [Or refillable?]The relatives have all gone home, the tree is down, the wreaths are off the front door and windows and we’ve mostly survived the crazy, w...
GiftsMy husband and I were wrapping Christmas gifts last night. I’m not sure we had the whole holiday spirit concept in proper focus as we moa...
I'm Headed to the Bathroom (or ... sit down and chill)All of us who are caregivers have been out in public, at the grocery store, in a restaurant, at boxing, when our loved one with Parkinson...
AARP Drive to Provide a Tax Credit for Family CaregiversIn the October/November 2019 issue of AARP The Magazine, the AARP National Volunteer President, Catherine Alicia Georges, has an article ...
YOUR PD WARRIOR HAS THE RIGHT TO FALL(I’m sorry…what??)Dad and I attended our usual PD support group this past Thursday. There was a guest speaker, a physical therapist who works with PD patie...
Great Expectations (...or being perfectly imperfect)It dawned on me the other day that, as a caregiver, I needed an attitude adjustment. I can’t change this abominable disease. I can’t chan...
MemoriesBefore I was a caregiver for my Dad, I was a caregiver for my Mom. She had idiopathic pulmonary fibrosis with hypersensitivity pneumoniti...
Take A PeekThe Parkinson's Foundation provides a wonderful library of resources to help us all live better with Parkinson's Disease, including this ...
OMG, I Think I Caught PD!As a caregiver, do you ever feel like you have “caught” PD? The other day I was carrying dishes and I was convinced my hand was shaking. ...